ATTENTION FAMILIES OF CHILDREN WITH NEUROFIBROMATOSIS TYPE 1

Last Updated: Monday, December 4, 2017

Principal Investigator: Laurie E. Cutting, Ph.D.

Description

We are currently looking for individuals ages 10 to 20 with Neurofibromatosis Type 1 to participate in a research study. We are trying to learn more about the best ways to teach people to read.

WHAT WILL BE INVOLVED:

  • Comprehensive evaluation of reading-related skills at Vanderbilt University
  • 4 Magnetic Resonance Imaging (MRI) scans of the brain
  • If you or your child meets our study criteria for having problems with reading, you or your child may be invited to participate. Participants will be randomly assigned to one of three different groups. 1: Reading tutoring program and a medication called Lovastatin 2: Reading tutoring program and no Lovastatin (placebo) 3: No reading (sham) tutoring and Lovastatin
    Lovastatin is not approved by the Food and Drug Administration for the treatment of reading trouble due to Neurofibromatosis Type 1.
  • Parent and teacher questionnaires

WHAT YOU WILL RECEIVE FOR PARTICIPATING:

  • Check for $100 for the first visit, $150 for the second visit, and $100 for the last visit.
  • Travel reimbursement available for NF-1 families living outside middle TN area
  • Participant Criteria

    Compensation

    Up to $350 and travel costs for qualified participants.

    Brochure

    Download Brochure

    Want to Participate in this Study?

    Enter your name and contact information and this study's coordinators will contact you if there are openings available.

    Your Name: (required)  
    Your Email: (required)   
    Your Phone Number: (not required)

    Also...

    To be notified when you are a possible match for a research study looking for participants, register with Vanderbilt's ResearchMatch at the link below.

    Research Match
    ResearchMatch.org is a free and safe national website that matches research volunteers with researchers looking for participants. Registries for Autism and Intellectual Disabilities are now available on ResearchMatch. Everyone is welcome to join, regardless of age, or condition. Visit www.researchmatch.org to learn more and to join today.