Last Updated: Monday, December 4, 2017
Principal Investigator: Laurie E. Cutting, Ph.D.
We are currently looking for individuals ages 10 to 20 with
Neurofibromatosis Type 1 to participate in a research study. We are trying to learn more about the best ways to teach people to read.
WHAT WILL BE INVOLVED:
- Comprehensive evaluation of reading-related skills at Vanderbilt University
- 4 Magnetic Resonance Imaging (MRI) scans of the brain
- If you or your child meets our study criteria for having problems with reading, you or your child may be invited to participate. Participants will be randomly assigned to one of three different groups. 1: Reading tutoring program and a medication called Lovastatin 2: Reading tutoring program and no Lovastatin (placebo) 3: No reading (sham) tutoring and Lovastatin
Lovastatin is not approved by the Food and Drug Administration for the treatment of reading trouble due to Neurofibromatosis Type 1.
Parent and teacher questionnaires
WHAT YOU WILL RECEIVE FOR PARTICIPATING:
Check for $100 for the first visit, $150 for the second visit, and $100 for the last visit.
Travel reimbursement available for NF-1 families living outside middle TN area
Up to $350 and travel costs for qualified participants.
To be notified when you are a possible match for a research study looking for participants, register with Vanderbilt's ResearchMatch at the link below.
ResearchMatch.org is a free and safe national website
that matches research volunteers with researchers looking for participants. Registries for Autism and Intellectual Disabilities are now
available on ResearchMatch. Everyone is welcome to join, regardless of age, or condition.
Visit www.researchmatch.org to learn more and to join today.