ATTENTION FAMILIES OF CHILDREN WITH NEUROFIBROMATOSIS TYPE 1

Last Updated: Tuesday, March 20, 2018

Principal Investigator: Laurie E. Cutting, Ph.D.

Description

We are currently looking for individuals ages 8 to 20 with Neurofibromatosis Type 1 to participate in a research study. We are trying to learn more about the best ways to teach people to read.

WHAT WILL BE INVOLVED:

  • Comprehensive evaluation of reading-related skills at Vanderbilt University
  • 4 Magnetic Resonance Imaging (MRI) scans of the brain
  • If you or your child meets our study criteria for having problems with reading, you or your child may be invited to participate. Participants will be randomly assigned to one of twodifferent groups. 1: Reading tutoring program and a medication called Lovastatin 2: Reading tutoring program and no Lovastatin (placebo)
    Lovastatin is not approved by the Food and Drug Administration for the treatment of reading trouble due to Neurofibromatosis Type 1.
  • Parent and teacher questionnaires

WHAT YOU WILL RECEIVE FOR PARTICIPATING:

  • Travel reimbursement available for NF-1 families living outside middle TN area
  • Check for $150 for the first visit, $750 for the second visit, and $150 for the last visit.
  • Report of child's performance on assessment measures (if first visit is completed)
  • Participant Criteria

    Compensation

    Up to $1050 and travel costs for qualified participants.

    Brochure

    Download Brochure

    Contact Information

    Education and Brain Sciences Research Lab
    (615)-343-8010
    educationbrain@vanderbilt.edu

    Want to Participate in this Study?

    Enter your name and contact information and this study's coordinators will contact you if there are openings available.

    Your Name: (required)  
    Your Email: (required)   
    Your Phone Number: (not required)

    Also...

    To be notified when you are a possible match for a research study looking for participants, register with Vanderbilt's ResearchMatch at the link below.

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    ResearchMatch.org is a free and safe national website that matches research volunteers with researchers looking for participants. Registries for Autism and Intellectual Disabilities are now available on ResearchMatch. Everyone is welcome to join, regardless of age, or condition. Visit www.researchmatch.org to learn more and to join today.