VKC UCEDD Research & Evaluation
UCEDD faculty and staff conduct research that aims to improve disability services and policies, and to identify causes of disabilities and novel ways to intervene and provide support for persons with disabilities and their families. We partner with our Community Advisory Council, State and community agencies, and families to identify pressing but under-studied topics. We also use existing large database to identify research and policy issues. We strive to integrate service, training, research, and dissemination across all UCEDD projects.
Individuals or families interested in taking part in research can view StudyFinder to find studies matching their interests
To register for research participation and be notified when a study matches your interests, view ResearchMatch.
Research activities include:
Disabilities, Religion and Spirituality Program includes research on practices that promote inclusion of individuals with disabilities in faith communities
Gatlinburg Conference on Research and Theory in Intellectual and Developmental Disabilities
Students may attend and may submit research posters for the annual premier conference
Prader-Willi Syndrome Research
A national study of individuals with PWS, 4 years and up, to understand the “whole person” with PWS, strengths and challenges, with the aim of developing behavioral and dietary interventions that lead to positive outcomes
Research Ethics Grand Rounds addresses issues that arise in research involving individuals with disabilities and families
A theatrical intervention research program to improve social and emotional functioning of children with autism and related neurodevelopmental disorders
Tennessee Administrative Database Project
Uses statewide, administrative databases to examine questions of health and family dynamics in Down syndrome compared to families of children without disabilities or children with other birth conditions
A federally funded Projects of National Significance charged with spurring systems change and building greater capacity and commitment for supporting competitive employment
Tennessee National Core Indicators(NCI)
National Core Indicators (NCI) began in 1997 as a collaborative effort between the National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the Human Services Research Institute (HSRI). The goal of the program was to encourage and support NASDDDS member agencies to develop a standard set of performance measures that could be used by states to manage quality, benchmark progress from one year to the next and make comparisons across states.
TRIAD Autism Research
Vanderbilt Autism Treatment Network
Monroe Carell Jr. Children’s Hospital at Vanderbilt, one of network of ATN sites supported by Autism Speaks to improve medical care for children and adolescents with autism
Williams Syndrome Research
A national study of individuals with Williams syndrome to understand the “whole person,” strengths and challenges, with the aim of developing interventions that lead to positive outcomes. Research is conducted with participants in the
Volunteer Advocacy Project